1. 🧵 I was at a get-together at a friend’s house. Someone asked how my #LongCovid was and others started listening. Someone else then said their husband has it. Then another said their sister-in-law hadn’t been right since having #Covid but they’d only just linked it…
2. 🧵Then another said their relative had a stroke after having #Covid and has never really recovered. Someone else’s daughter never recovered from Covid and when I last saw them 6 months ago she had had no healthcare so I gave them some general information…
#LongCovid
#LongCovid
3. 🧵She since developed typical symptoms of #PoTS. GP referred her to a #LongCovid clinic who spoke to her 3 weeks ago. She is waiting for a TTT, appointment is in 3 months’ time. BUT she was given no advice by her GP or LC clinic to try to help her symptoms whilst she waits…
4. 🧵 So I sat with her Dad, directed him to various resources and talked in general about #LongCovid. They were so grateful as their daughter had been given no advice by her GP or LC Clinic. The question is… why the hell not?! …
#CureLongCovid
#CureLongCovid
5. 🧵So many people have #LongCovid - it often takes one person to speak up before others are comfortable talking about it - and although we currently have no cure there are things that can be done & medications prescribed that can help lessen the impact…
6.🧵Yet so many continue to struggle alone or whilst they wait for appointments. If it wasn’t for charities such as @long_covid providing support to thousands, advocating for appropriate care, pushing for research, and much more, how much worse would things be?…
#LongCovid
#LongCovid
7. 🧵 And there are other #LongCovid charities/organisations too, such as @LongCovidKids, working hard whilst ill themselves, not giving up, constantly pushing for what is needed…
8. 🧵There are some researchers too who are determined to find answers, despite being looked down on by other researchers because they are focussing on #LongCovid rather than a ‘sexier’ field of research…
9. 🧵 Well I can’t think of a better illness to try to get to the bottom of - one that’s destroying millions of lives, causing mass disability, hammering health services, decimating workforces, demolishing the economy, stealing education and massacring childhoods…
#LongCovid
#LongCovid
10.🧵So THANK YOU, to all who support others whilst on their knees themselves, and to those who push the research despite their peers looking down on them, and to the fantastic #LongCovid community who hold each other up and continue to speak out. We are #StrongerTogether💜
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